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NEUROMUSCULAR DISEASE

The patient has:

Critical breathing capacity with the following findings:

  • Dyspnea at rest
  • The requirement of supplemental oxygen at rest
  • The patient declines artificial ventilation or
    Critical nutritional impairment evidenced by:
  • Oral intake of nutrients and fluids insufficient to sustain life
  • Continuing weight loss
  • Dehydration or hypovolemia
  • Absence of artificial feeding methods or
    Rapid disease progression or complications in the preceding 12 months evidenced by:
  • Progression from independent ambulation to wheelchair or bed bound status
  • Progression from normal to barely intelligible or unintelligible speech
  • Progression from normal to pureed diet
  • Progression from independent in most or all activities of daily living (ADLs) to needing major assistance by caretaker in all ADLs
    Life-threatening complications in the preceding 12 months as evidenced by one or more of the following:
  • Recurrent aspiration pneumonia (with or without tube feedings)
  • Upper urinary tract infection (pyelonephritis)
  • Sepsis
  • Recurrent fever after antibiotic therapy
  • Stage 3 or 4 decubitus ulcers
  • A physician may determine that a patient has a life expectancy of six months or less even if the above findings are not present. Co-morbidities also support eligibility for hospice care.




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